Prenatal Testing for Down Syndrome
Dangerous for All Babies
Part Three of Three
By Liz Townsend
A study published by Down Syndrome
Education International, a British charity organization, reports that
invasive prenatal testing kills 400 healthy babies a year who had been
identified as having the condition by false-positive blood tests, The
Telegraph reported.
The testing also results in annual
abortions of 660 British babies with Down syndrome who would have survived
until birth if the pregnancies were allowed to progress, Frank Buckley and
Sue Buckley wrote in the online version of Down Syndrome Research and
Practice.
The Buckleys published the study in
order to spur discussion of the ethics of prenatal testing and abortion for
Down syndrome as screening techniques become more advanced and more common.
"The authors of this editorial do not consider a diagnosis of Down syndrome
to be a sufficient reason to justify termination and so disagree with the
basic premise for prenatal screening for Down syndrome," they wrote.
"Harming babies who do not have Down syndrome in the process seems to us
unjustifiable."
"When widespread prenatal whole genome
screening becomes a possibility, many of the troubling issues raised by our
experiences of screening for Down syndrome will be brought into sharper
focus," the Buckleys continued. "The technology may be with us within 5
years. The authors believe that wider public debate should begin now."
Their concerns about prenatal
screening are timely. Statistics published in the National Down Syndrome
Cytogenetic Register in April, covering diagnoses and outcomes for
pregnancies in England and Wales, estimated that 92% of unborn babies whose
Down syndrome was discovered in utero were aborted in 2006.
Now, the National Institute for Health
and Clinical Excellence is recommending that all pregnant women should
undergo "combined screening" for Down syndrome, which would include blood
tests and scans, according to Press Association (PA).
Because of these developments, Down
Syndrome Education International sent a letter to the prime minister in
September urging the government to review its policies on Down syndrome and
prenatal testing.
"We believe that there has been
inadequate public debate to support a public health policy designed to
genetically screen against the birth of people who typically have moderate
learning difficulties and additional risks of health conditions that can be
successfully treated," the organization wrote. "Down syndrome screening sets
a worrying precedent for the prenatal diagnosis and termination of babies
identified by an ever-widening range of genetic risk factors for mental and
physical characteristics."
Part One
-- Order Copies of the October Issue of NRL News Today
Part Two --
"Believing nothing I read or watch
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