New Book
Offers Hope and Help to Those
Carrying and Raising Children with Disabilities
--
Part Two of
Two
Reviewed By Randall K. O'Bannon, Ph.D.
My Child, My Gift: A Positive Response to a Serious Prenatal
Diagnosis
By Madeline P. Nugent
Published by New City Press, 2008
Editor's note. We previously ran this stirring review in National
Right to Life News. But in light of pro-life Gov. Sarah Palin's loving
and faithful response to news that her fifth child would have Down
syndrome, it seemed most appropriately to share this with TN&V readers.
Each year, approximately
four million babies are born in the United States. Government sources
say about 3% of those children, or about 120,000, will be born with some
sort of disability. Many of these are operable or treatable, but some
involve conditions for which there is currently no effective medical
treatment or have generally been found to be incompatible with extended
life.
Testing for such anomalies
is now offered to pregnant women as a matter of course. The reaction of
the medical establishment, as well as many in the society at large, to a
serious prenatal diagnosis, however, has often been to urge parents to
abort a child that might be born with a disability, whether the
condition is thought to be incompatible with life or not. Those families
receiving a grimmer prognosis may face enormous pressure to abort.
What can a concerned
pro-lifer say to young parents who have just been told that an
ultrasound shows their baby's brain isn't developing? How can a pregnant
mom stare down a medical establishment that doesn't want to help her
give birth to her child with a disability? What sort of practical
assistance and encouragement will help a family with a diagnosis of Down
syndrome feel more confident in managing their situation?
There's a new book that
will not only help those dealing with a serious prenatal diagnosis but
will also enable those who want to support others who choose life in
challenging circumstances. Madeline P. Nugent's My Child, My Gift: A
Positive Response to a Serious Prenatal Diagnosis is a wonderful,
positive, practical guide to those facing such a diagnosis in a culture
that does not always welcome the weak, the sick, or the different.
Nugent's sensitivity and
gentleness are evident on each page. They are things our
abortion-saturated society desperately needs to relearn.
The book is filled with
practical advice and information. But the bulk of it is first-hand
accounts of parents who have lived through, and experienced the blessing
of, the birth of a child with a disability.
Positive but not
Pollyannaish, Nugent admits that many of those children with the most
severe disabilities will die soon after birth. Countering prevailing
social and medical trends, though, Nugent argues and offers evidence
that aborting the child--not allowing the pregnancy to progress to
conclude naturally--often only brings further damage to the family and
its relationships.
One mother told Nugent she
regretted the decision to abort every day.
Why didn't anyone tell
me that I would carry around this guilt and sorrow? Why wasn't I
informed that my "choice" would cost me so much emotionally and
physically? Why didn't anyone remind me that a sick baby needs her
mother to care for her and love her?
Other parents who resisted
pressure to abort found even a few moments with their child precious.
Although I knew my son
was dying, I had never been happier in my whole life because he was the
greatest gift I had ever received. I would do it all over again just for
those wonderful thirty-six hours we had with Tanner.
Nugent takes a family
carefully, gently, through the grueling process they will face. It
begins with "Finding Out," where, in Chapter One, Nugent recreates the
circumstances under which a family first receives the news. "When you
receive a serious prenatal diagnosis," Nugent candidly informs, "you are
overcome with anger, confusion, disbelief, denial, or grief."
Throughout the next four
chapters Nugent offers panoply of loving advice and ways of caring for
children with serious anomalies, even adding a discussion of how to tell
other family members.
The toughest chapter is
the sixth, "Birth and Death Plans," dealing with the arrival of a child
with what Nugent terms a "fatal diagnosis." Gently, Nugent advises mom
and dad, that from the moment of the diagnosis forward "Your time with
your baby is very limited. The time to love and nurture your baby is
now."
For those with children
who do survive, Nugent offers Chapter 7, "If Your Child Lives." To gain
some long-term perspective, Nugent suggests parents keep a diary that
candidly includes both problems and progress. In the process they will
have a record of how different crises were weathered. Attitude is key
here, says Nugent. "If you decide to be positive, you will be. If you
want to wallow in self-pity, you will."
"Into the Future with a
Child Who Survives," the eighth chapter, offers a continuation of
Nugent's practical advice to parents of children with disabilities.
"Your child will change
you," Nugent tells parents in the final chapter, "The Gift of Your
Child." One mother of a child with Down syndrome tells Nugent that "The
greatest surprise is this: Our life together has been less about my
helping him reach his potential than about him helping me reach mine."
Nugent says, "Your child
was never given to you for you alone. Your child has a mission in
life--to make the world a better place because he or she was in it. Your
mission is to see that it happens."
You can order this
wonderful resource at
www.mychildmygift.com. A single copy is $14.95 with $6 for shipping
and handling.