According to Healy, when you think of your and my medical
records whirling through cyberspace, think of "a giant
research laboratory. You name it: Prevention strategies,
diagnostic approaches, treatments, outcomes, and costs will
be analyzed to reach a better understanding of practice
patterns and find those that seem to work the best.
Resulting insights, integrated with evidence from clinical
research, will be distilled into clinical decision-making
tools for doctors--such as those user-friendly pop-ups."
"Pop-ups" were a completely new notion to me, and perhaps to
you. We need to understand what they are because Healy tells
us they are part and parcel of how Obama promises to
supposedly cut costs and standardize the quality of care.
(Hint from Healy: care could be standardized downward!)
The idea
is that when the doctor types in your medical condition, he
or she will receive a real-time assessment (the
aforementioned "pop up") of "what is deemed to be the best
option for care" And truly the devil (in this case
rationing) is in the details-- the guidelines within which
that assessment is made and how those guidelines are
arrived at.
Enter
"comparative effectiveness." Along with the standardization
of care, it is (in Healy's words) the "other pillar of
reform." Indeed, it's allegedly so effective that (quoting
Healy) "A little over a year ago, the Congressional Budget
Office, under Peter Orszag (now the head of Obama's Office
of Management and Budget), issued a paper noting the
opportunity for 'an expanded federal role' in constraining
costs without adverse health consequences by more
aggressively investing in comparative-effectiveness
research."
So for
those of us worried about rationing, are there dangers
lurking in "comparative effectiveness"? Well, first (as
Healy does) it's important to acknowledge that sometimes
tried and true (and much cheaper) technologies and treatment
are available. So just adapting something pricier doesn't
necessarily mean you are getting better care.
But
sometimes it does mean that. What to do then? Healy
notes there is "an obvious approach." By this she means, for
example, "tough and open negotiations on price--between the
government and drug companies."
Let's
see what's going on in Great Britain. Something called the "National Institute for Clinical Excellence" (NICE!) makes
pronouncements that assess "a therapy's value and setting
standards of care." The National Health Service uses this to
guide what it offers patients. If the cost of your
treatment isn't "justified," you're out of luck.
Whether
something is "justified" is where the diagnostic rubber hits
the rationing road.
According to Dr. Healy, Britain uses "the quality-adjusted
life year" (QALY), a measuring tool to decide if your
treatment is "worthwhile." It's too complex to explain at
length but the gist is ominous.
Healthwise, say you are the lower end of the QALY scale. An
expensive treatment would bring you the same one-year
extension of life that someone whose overall health is twice
as good as yours would receive. However, under the QALY
formula (since you are only half as "healthy"), it would be
counting as providing only six months more for you to live
and thus (under the formula) twice as expensive.
Consequently, the treatment "may be deemed too costly."
There
are no two ways about it: QALY makes clear quality-of-life
judgments--judgments about "the worth of a
less-than-'perfect' life," as Healy writes. "The Germans,
for example, have categorically rejected QALYs, and many
believe fervently that they have no place in healthcare
decisions."
Does
Obama's plan specifically reference the British model? No,
but "Tom Daschle, his first choice to lead healthcare
reform, is a fan of creating a NICE equivalent," Healy
explains. "I doubt it would be so welcomed here."
Healy's
penultimate paragraph brilliantly weaves these threads
together.
"These
are issues for doctors and patients to weigh in on.
One-size-fits-all
care flies in the face of personalized medicine, or
tailoring treatment to patients' unique makeup. Standardized
care does upgrade the performance of mediocre docs, and
there are some out there. But it does not take into account
the reality of doctoring in a complex situation riddled with
uncertainty, multiple health problems, and many options."