Where Medical
Paternalism Edges Over Into Medical
Coercion
Part One of
Two
By Dave
Andrusko
Editor's note.
Part Two
discusses "Defeat for
Futile Care in New Jersey."
Be sure to post these TN&V
on your social networking pages by going to
www.nrlc.org/News_and_views/Mar09/nv031809.html
and clicking on the "Share" button.
If you have
comments, please send them to
daveandrusko@gmail.com.
I know I
really don't have to mention this to regular
readers of TN&V, but we do have a lot of
people who come upon our daily blog when
they visit NRLC's web page (www.nrlc.org)
who might not be as up to speed. Every news
story has to be read carefully, not just to
understand the information conveyed, but to
grasp the reporter's "take." That also holds
true for articles in professional journals.
Put another
way, there aren't many Joe Friday "just the
facts, ma'am" stories these days. Take a
story from this morning's Los Angeles
Times, "Aligning treatment plan with
God's plan; Faith drives some patients to
fight, and suffer more at the end." (The
BBC's headline is punchier and far less
judgmental: "Pious
'fight death the hardest.'
People with strong religious beliefs appear
to want doctors to do everything they can to
keep them alive as death approaches, a US
study suggests.")
Both
stories addressed an article in the Journal
of the American Medical Association, whose
lead author is Holly Prigerson, director of
the Center for Psycho-oncology and
Palliative Care Research at the Dana-Farber
Cancer Institute in Boston. Funded by the
National Institutes of Health and a grant
from the Fetzer Institute, it was (according
to Times reporter Karen Kaplan) to "study
spirituality at the end of life." Sounds
pretty neutral, or even respectful, right?
The BBC
account pretty much sticks to the story.
"Those who regularly prayed were more than
three times more likely to receive intensive
life-prolonging care than those who relied
least on religion." But for those with eyes
to see and ears to hear, from the first
sentence to the last in the Times story, you
can't miss the tone: who are these
crazy people of faith who are much more
likely to fight terminal cancer until the
very end?
We learn
from Kaplan that "Faith in a higher power
can often lead to more aggressive treatment
than is medically warranted, research is
beginning to show." An alarm instantly went
off in my head. Sure enough, the next
sentence is, "As a result, the nation's
medical community is now grappling with the
best way to bring God into the
doctor-patient relationship without
subjecting patients to needless suffering
before they die."
In the
Times story there are lots of little
hints that those who are unwilling to go
quietly into the night border on masochism,
who in their religiosity miss the point:
they oughtn't to want a few more days (or
weeks? or months?) if their "quality of
life," according to Prigerson, is "worse."
The Times
story puts what is to the researchers a
disturbing trend--"To very religious
patients, avoiding pain and suffering may
not be the priority," according to Prigerson-- in the larger context of other
recent studies.
"Religious
cancer patients who had unsuccessful
chemotherapy treatments were twice as likely
to want heroic end-of-life measures,
according to a report last year in the
Journal of Clinical Oncology," Kaplan
writes. "A 2005 study in the Annals of
Behavioral Medicine found that patients
with advanced-stage lung or colon cancer
were more likely to want CPR, mechanical
ventilation and hospitalization if they
believed in divine intervention."
[Notice the next
sentence: "They were also less likely to
have a living will."]
And then there a
survey published in 2008 in the Archives
of Surgery. 1,006 randomly selected
Americans "said religious faith would
influence their decisions about medical
treatment if they were severely injured.
More than half said God could heal patients
whom doctors thought were beyond the reach
of medicine."
There is a lot
of back and forth--and a few bones thrown to
those of us who don't think these people are whackos--and then Kaplan gets, one suspects,
to the real agenda, of the study: "Some
healthcare providers are now reconsidering
what it means to have a 'good death.'"
Please don't
miss what's being suggested. In light of
these patients' irrational insistence on not
giving up the ghost at the time we
think they ought to, we, as omnipotent
physicians and hospital administrators, are
reconsidering what a "good death" is. Very
scary stuff.
The story
proceeds with examples of doctor-knows-best
run amuck, although obviously neither the
reporter nor Prigerson would see it that
way. All of this in service of the preferred
answer: "Accepting death, on the other hand,
can provide an opportunity to get one's
religious affairs in order and make the most
of remaining time with family and friends."
Conveniently,
this greater willingness just happens to
address the nexus of quality of life and
quantity of cash. "If doctors are more
successful at bridging the divide between
religious beliefs and end-of-life care,"
Kaplan writes, "the financial savings could
be significant." We learn, "In a study
published last week in the Archives of
Internal Medicine, Prigerson and her
colleagues found that patients who discussed
their wishes for end-of-life care ahead of
time accrued $1,876 in medical expenses in
their final week of life compared with
$2,917 for patients who didn't."
To be sure,
the researchers in the study acknowledged
"that religion had been widely associated
with an improved ability to cope with the
stress of illness," as the BBC put
it. But "'because aggressive end-of-life
cancer care has been associated with a poor
quality of death and caregiver bereavement
adjustment, intensive end-of-life care might
represent a negative outcome for religious copers',
defined as those who regularly used prayer
or meditation for support."
I haven't a
clue what that means in English. Just
guessing it probably means exactly what the
researchers don't approve of. That in
exchange for some additional time, "more
aggressive treatment" is tendered "than is
medically warranted."
But, of
course, it is not up to medical personnel to
unilaterally decide what is "warranted," or
to flash their medical degrees to pressure
the patient (or the family) into making
decisions they don't want to make. About
that we have in Part Two ("Defeat
for Futile Care in New Jersey")
a perfect illustration of just how far
hospitals want to go.
If you go to
www.nrlc.org/ObamaAbortionAgenda/WhattoDo.html
you will be taken to a page which offers you
information about what you can do to help
National Right to Life fight Obama's
Abortion Agenda, become a member of National
Right to Life, or, if you are a member
already, find new people to join NRLC.
Part Two --
Defeat for Futile Care in New Jersey
Send this page to a friend!