|
More Misdiagnoses of Brain-Injured Patients
I trust you had a great weekend. It's good to get back together again on a
Monday. I hope you are enjoying TN&V and sharing it with family and friends.
One person initially (and then several others subsequently)
e-mailed me a story that appeared last week on ABC News. The title is
off-putting, "Trapped in Your Own Body," but if you read through Carol
Berczuk's story [http://a.abcnews.com/Health/story?id=2835149&page=1]you'll
feel much better by the end.
It's obvious that there is a continuum of brain injuries,
from mild to devastating. But it is no less true that because the brain is
such a marvelously complex organ and "consciousness" so tricky to pin down,
patients
do
get misdiagnosed.
Patients with
"Locked-in Syndrome" can "see, hear, feel and understand everything,"
according to Berczuk. "They just can't move." The culprit is a
massive stroke that is "different from other strokes in both its
location and severity."
According to
Berczuk, locked-in syndrome is very rare and so hard to properly diagnose
that "doctors often believe their patients are vegetables when they are
not." (You'd expect a medical correspondent to be above dubbing people
"vegetables," but that's what she wrote.)
The ABC News
story is actually quite encouraging, focusing as
it does on two patients who've made partial recoveries. Two things stand
out, beyond the most important: the refusal of loved ones to passively
accept inaccurate medical diagnoses and "allow" their spouses to die.
First, even though
Steve Chiappa was making ever-so-gradual progress, for a long time he wished
he could die.
"He would say to
me, 'I want to die. I want to die. You've gotta help me, you have to help
me. I can't do it myself,'" his wife, Cindy, told Berczuk.
The turning point,
Steve told Berczuk, came "when he realized that Cindy and his family still
loved him."
The second, as
illustrated by Kevin and Glenda Hickey, was the resolute determination to
keep as normal a life as the situation allowed. That unexpectedly included
Glenda becoming pregnant. Read the following and be uplifted:
"At
first, their doctor urged them to terminate the pregnancy because it was so
risky for Glenda. But in the delivery room the doctor apologized, telling
Kevin, 'You know, I think God had a little hand in this one.'
"Hope Hickey
was born 20 months ago. Doctors believe that this is the first time that a
woman living with locked-in syndrome has given birth.
"It is clearly
not the life they'd planned. But Glenda and Kevin still find joy in the life
they're living. And they say that, in the end, is all anyone can ask for."
There are
treatments in the pipeline, including, of all things, Viagra. In experiments
with rats, the drug assisted their brain to make new cells, helping them
recover from strokes, according to Dr. Michael Chopp, a neuroscientist at
Henry Ford Hospital in Detroit.
"I think we are
poised to revolutionize the treatment of neurologic disease," he told
Berczuk.
Again, you can
read the full article at
http://a.abcnews.com/Health/story?id=2835149&page=1
If you have any
questions or comments, please write Dave Andrusko at
daveandrusko@hotmail.com |