The Impact of "KIDS"
Part One of
Two
By Dave Andrusko
Part Two is a wonderful
discussion of how pro-lifers are
using "Twitter." Please send
your comments on both parts to
daveandrusko@gmail.com. If
you'd like, follow me on
http://twitter.com/daveha.
I can't read something like
"Testing Curbs Some Genetic
Diseases," which ran in the
Associated Press this morning,
without thinking back to last
January 22. The manner in which
some genetic diseases has been
"curbed" is through a vast
expansion of genetic testing and
aborting almost every child
identified to have genetic
mutations--or, in the case of
Down syndrome, an extra
chromosome.
 |
|
Congresswoman Cathy
McMorris Rodgers (R-WA)
and her son Cole
(center) meet with
families of children
with Down syndrome at
the KIDS event held at
NRLC prior to the March
for Life. |
For the second year in a row,
the NRLC offices were graced by
the presence of a large
contingent from "KIDS" (Keep
Infants with Down Syndrome). And
for the second year in a row
Rep. Cathy McMorris Rogers (R-Wa.),
who has a son with Down
syndrome, met with and spoke to
the group. I asked KIDS
co-founder Eileen Haupt, who is
the alternate director to the
NRLC board from Vermont, to
summarize the time together.
Eileen wrote,
"Congresswoman Cathy McMorris
Rodgers of Washington State's
5th congressional district was
the special guest at the KIDS
event, bringing her 3-year-old
son Cole, who has Down syndrome.
Rodgers is the founder and
co-chair of the Congressional
Down Syndrome Caucus. The caucus
educates members of Congress
about Down syndrome and promotes
policies that would enhance the
quality of life for individuals
with Down syndrome."
"Rogers spoke about legislation
in Congress affecting
individuals with Down syndrome
and others with special needs.
She mentioned the Prenatally and
Postnatally Diagnosed Conditions
Awareness Act, which was signed
into law in the Fall of 2008.
This legislation requires
families who have received a
diagnosis of Down syndrome or
other conditions be given
up-to-date information, but now
requires funding. Another piece
of legislation that has been
introduced is the ABLE
(Achieving a Better Life
Experience) Act of 2009, which
establishes tax-exempt accounts
for the care of family members
with disabilities."
My extended family is very
familiar with children born with
devastating genetic anomalies. I
also have friends whose children
have Down syndrome. So I know of
what I speak and know how
couples might be tempted to
abort children found to have
something like cystic fibrosis
or thought to have Down
syndrome.
Those who fought their through
these doubts and difficulties
did so in no small reason
because of their faith and
because they were blessed with a
support system of relatives,
friends, and something like
KIDS. God bless them all.
Finally, what does it say to the
children who evaded the
screening? This is no small
issue, both for it does to the
children and how it coarsens us
as a people.
The Associated Press story I
alluded to at the beginning
includes a quote from Dr. Barron
Lerner, a Columbia University
medical historian, who wrote an
article that appeared in the
October 22, 2009, edition of the
New England Journal of Medicine.
"If a society is so willing to
screen aggressively to find
these genes and then to
potentially have to abort the
fetuses," he observed, "what
does that say about the value of
the lives of those people living
with the diseases?"
Part Two |