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PGD and
Designer Babies: Same Problem Only Worse
By Dave Andrusko
Editor's note. Please send
any comments to
daveandrusko@gmail.com.
A promise momentarily
deferred. Tomorrow I will return to
discuss the many, many responses to several
recent stories, including the possibility that
Madison Surgery Center, an outpatient health
clinic in Madison, Wisconsin, will soon be
aborting unborn babies between 19 and 22 weeks.
So many people forwarded me a
story from today's Wall Street Journal–"A Baby,
Please. Blond, Freckles -- Hold the Colic:
Laboratory Techniques That Screen for Diseases
in Embryos Are Now Being Offered to Create
Designer Children"–that I thought it best to
talk about this breaking news story.
There are only so many story
lines to justify attempts to "push the
envelope," morally and ethically. For example,
yesterday we talked about a memoir written by a
man who had "assisted" both his parents to
commit suicide.
The launching salvo for the
case for assisted suicide is always that of
people in the most miserable (and fatal) medical
conditions, who are fully cognizant of their
situation, and who feel no outside pressure to
kill themselves. But the inevitable trajectory
is to include diseases that are not fatal,
people who are unable to evaluate their
situation rationally (most often because of
depression), and to blow pass the death as a
"voluntary" decision by subsuming it into the
need to "contain spiraling medical costs."
So it is with "PGD"--pre-implantation
genetic diagnosis. The technique, which
originated in the 1990s, takes a quick peek in
the lab at the human embryo, created by in vitro
fertilization to find out if the three-day old,
six-celled embryo carries a particular genetic
disease.
Those life-threatening
illnesses originally included cystic fibrosis,
sickle cell disease and muscular dystrophy. If
the embryo "flunked" the test, the embryo
would be disposed of. If not, they would be
implanted in their mother's womb, according to
the Wall Street Journal's Gautam Naik.
Of course it was never that
simple. A various number of human embryos would
be created. Those that were found to be carrying
the disease would be discarded, but not all
those who passed the PGD test were necessarily
implanted.
But that was then and this is
now. Where once the conversation was about
preventing such life-threatening illness, it has
long since mutated. For one thing it includes
such non-fatal conditions as Down syndrome. For
another thing technicians are screening for
non-medical reasons.
"The science behind [PGD] has
quietly progressed to the point that it could
potentially be used to create designer babies,"
writes Naik. "It isn't clear that Fertility
Institutes can yet deliver on its claims of
trait selection. But the growth of PGD,
unfettered by any state or federal regulations
in the U.S., has accelerated genetic knowledge
swiftly enough that pre-selecting cosmetic
traits in a baby is no longer the stuff of
science fiction."
Same principle: you create
human embryos in the lab, hold them up like
diamonds to the light, and if they are
"flawed"--don't give you want you want--you toss
them out. Only now it could be an issue of
"characteristics"–such as the child needing to
be the "right" gender.
In that context, Naik reminds
us that "While many countries have banned the
use of PGD for gender selection, it is permitted
in the U.S. In 2006, a survey by the Genetics
and Public Policy Center at Johns Hopkins
University found that 42% of 137 PGD clinics
offered a gender-selection service."
Next in line? Essentially
cosmetic issues, such as securing the right
height, eye color, complexion, and hair color.
Some old timers say they are
opposed. Mark Hughes, described as the director
of a large fertility laboratory in Detroit (and
a familiar name in PGD circles), says that
while, "It's technically feasible and it can be
done," "no legitimate lab would get into it and,
if they did, they'd be ostracized."
Not at all says Jeff
Steinberg, director of the clinic whose web
sites advertises gender and physical trait
selection. "This is cosmetic medicine," he tells
Naik. "Others are frightened by the criticism
but we have no problems with it."
Indeed trait selection in
babies "is a service," Dr. Steinberg tells Naik.
"We intend to offer it soon." |