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"The bottom line is she doesn't
go hungry" By Dave
Andrusko
Talk about carefully reading
between the lines. The article in yesterday's New York Times is
headlined, "Feeding Dementia Patients With Dignity," and is
written by Roni Caryn Rabin.
Sparked by a recent paper in The
Journal of the American Geriatrics Society, there are many
tender passages and gentle acknowledgements in the story that as
our population ages there will be increasing numbers of us Baby
Boomers whose cognitive setbacks will mean we'll be unable to
feed ourselves.
According to Rabin, the
"quandary" (of "whether or not to have a gastric feeding tube
inserted") "which usually arises near the end, when Alzheimer's
begins to destroy the part of the brain that controls eating --
is often presented as a stark choice between providing
nourishment and withholding it." Using the case of a particular
woman and her mother, Rabin argues there is a third way--
"comfort feeding only"--which is "to have her mother carefully
fed by hand, giving her only as much as she wanted and stopping
if she started choking or became agitated."
I'm no expert, by any stretch of
the imagination, but a couple of concerns came to mind, prompted
largely by the individual who forwarded the column to me and
many others.
Who would at first blush disagree
with this? "We believe careful hand-feeding is a much more
humane way of taking care of these people, and preserves the
patient's dignity," as an author of the paper, Dr. Joan Teno, a
professor of community health at Brown University's medical
school, told the Times. "They can still have that human
interaction and intimate contact that comes with being fed."
The dilemma is, as illustrated by
anecdotes in the story, that this feeding by hand can take a
long time. What if the patient doesn't have family and/or is in
a facility with constant staff turnover? Add to this the
possibility that the controlling ethos is that patients aren't
going to "get better" anyway and the chances of the patient
dying from lack of proper nutrition (and medications) are
substantially increased.
And as was pointed out by the
individual who sent this article along, hand-feeding is out of
the question for brain-injured patients who cannot swallow.
Rabin ends with the story of an
86-year-old gentleman who has hand-fed his wife for years and
years.
"Some days are better than
others," he said. "The food is puréed, and she doesn't eat a
full meal. But I always give her at least half a banana every
day, and strawberries in season." \
"The bottom line is she doesn't
go hungry," he said. "She looks good."
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