By Eileen Haupt
 |
|
Some members of KIDS gathered at
the NRLC office before heading out to the March for
Life. |
Since 1981 October has
been designated as "Down Syndrome Awareness Month." One way
to raise awareness and support individuals with Down
syndrome is to participate in a local one-mile-long "Buddy
Walk." The Buddy Walk was established by the National Down
Syndrome Society (NDSS) "to promote acceptance and inclusion
of people with Down syndrome."
These events help raise
awareness about a condition that is still very much
misunderstood by many. In this modern age of information,
many still have outdated ideas about people with Down
syndrome or what it is like to parent a child with Down
syndrome. Many believe that individuals with this condition
have a poor "quality of life."
But by all accounts, there
has never been a better time, in the history of the world,
for babies with Down syndrome to be born. There is greater
knowledge of this genetic condition than ever before,
supportive laws, inclusion in schools, advanced medical
technology to treat physical problems, exciting new research
that may lead to treatments for cognitive challenges, and in
general, more understanding toward those with intellectual
challenges, despite the misconceptions.
So it is a great shock to
many to learn that approximately 90 percent of babies
prenatally diagnosed with Down syndrome are aborted. This
statistic is tragic enough, but a couple of recent
developments will most likely reduce, even further, the
number of babies who make it to birth.
New guidelines,
recommending that all pregnant women be offered prenatal
testing for Down syndrome, were issued a few years ago by
the American College of Obstetricians and Gynecologists
(ACOG). Previously, the practice was that only older women,
those consider "high risk" for conceiving a baby with Down
syndrome, were offered testing. This new ACOG
recommendation, combined with the development of more
accurate prenatal testing, earlier in the pregnancy, will
undoubtedly result in many more babies with Down syndrome
being detected and aborted.
The leading Down syndrome
advocacy groups, such as NDSS, do wonderful work and
obviously have a heart for individuals with Down syndrome.
But sadly, they are virtually silent on this tragic reality.
Perhaps, because they don't want to get into the "politics"
of abortion. It is, therefore, up to pro-lifers to raise
awareness about this shocking statistic.
A few years ago, Leticia
Velasquez and I, each a mother of a child with Down
syndrome, felt compelled to do more to raise awareness about
the high incidence of abortion of these babies. We organized
a group of families who have a child with Down syndrome to
meet at National Right to Life headquarters, and walk
together in the annual March for Life in Washington, D.C. We
called our group, KIDS (for "Keep Infants with Down
syndrome"). We sparked a lot of interest and realized that
we filled a niche that needed to be filled.
It occurred to me recently
that out of all the hundreds of thousands who participate in
the March, we might be the only group that represents
individuals who are specifically targeted for abortion.
So this October, find a
local Buddy Walk event in your area to support individuals
with Down syndrome and to help raise awareness about this
condition.
Additionally, here are
some ways you can raise awareness about the high abortion
rate of these babies and to affirm the value of their lives:
Write a letter to the editor of your local paper, join in
on-line parenting or pregnancy blogs, use on-line tools such
as Facebook and Twitter. If you have a child with Down
syndrome, your witness is especially powerful.
For example, one mother
recently posted on Facebook a beautiful photomontage video
with photos of her daughter, interspersed with information
about Down syndrome.
Finally, if you have a
child with Down syndrome, join KIDS for the 2011 March for
Life. We'll be posting information at our blog
http://www.keepinfantswithdownsyndrome.blogspot.com in
the next few months.