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Am I next?
By Dave Andrusko
The headline to the story in the
British newspaper the Telegraph read, "Genetic tests could
prevent those like me being born at all." It is one of a cascade
of stories from people who read as if they are (more or less)
reluctantly "pro-choice" but deeply unsettled by the prospect of
a massive increase in the number of abortion because prenatal
genetic "profiling" unable us to target larger and large numbers
of less than perfect children.
I
am not familiar with the author, Alasdair Palmer, but as someone
who lives with MS, he is keenly aware that babies with MS would
be in deep trouble if it becomes possible to detect that fetal
anomaly. (According to Palmer, that's not the case now, because
"though it has a genetic component, [multiple sclerosis] is not
a single-gene disease and so cannot be detected in DNA.") But,
he asks, what if……
He's making an attempt, I think,
to pull people in who would hardly qualify as pro-lifers. Take
this paragraph:
"Most people accept, rightly,
that a decision on whether a foetus should be aborted ought to
depend not just on the parents' view of whether or not they want
to look after a child with this or that genetic defect, but on a
balanced and careful judgment of whether the child would have a
life worth living. That judgment should certainly count for more
than the parents' view of whether they feel like caring for
(say) a baby with a cleft palate or of unusually low
intelligence. At present, however, it need not play any role at
all. All that is required is that the mother should believe that
the quality of her life would be severely diminished if she had
to give birth to and bring up the child."
Palmer's entire essay is built
around one theme, although with many offshoots.
"If new tests eventually enable
scientists to identify every genetic defect in a foetus, on what
basis will it be possible for doctors, or the law, to maintain
that you can abort a foetus with one particular genetic problem,
but not another one – autism, for example, or dyslexia, or being
exceptionally short? This seems to me to be a genuinely slippery
slope, in the sense that once you are on it, it's very hard to
get off. I cannot see any basis that would enable the law to
specify, never mind enforce, a principle which says: this
genetic defect is bad enough to mean that it would be better if
the foetus was never born – but this one isn't."
Exactly.
Currently, the target for
genetically-based termination is primarily babies found to have
Down syndrome. But the number can only accelerate as the
screening becomes more expansive and extensive--bundled together
with the assurance that the test will not accidentally abort
"perfect" babies.
And when/if we are unable to stop
this, Palmer warns, "Of course we have the result of installing
eugenics at the level of policy."
You can read his essay at
www.telegraph.co.uk/comment/columnists/alasdair-palmer/8196287/Genetic-tests-could-prevent-those-like-me-being-born-at-all.html.
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